Battles Battles Battles

Does anyone else feel drained by the battles of society? Or is it just me? Although part of me hopes people say they are experiencing the same- I am not the only one. Part of me doesn’t want other people to suffer, and I suppose part of me hopes my bad experience is a one off. To give people the benefit of the doubt.

Unfortunately, deep down I know I am not the only one. It is not a one off. This saddens me.

A Few of the Disability Battles

From understanding the complex benefit system, to Social Services, to Wheelchair Services, accessing essential equipment, to planning for a future, to even a (supposedly) simple thing like getting a Power of Attorney. Why does everything have to be a battle?

I mean you start with a disadvantage of being disabled, so having less hours in the day as not everyone’s 24 hours are the same. Then with pain, fatigue and the fact things take a lot longer, your time is more valuable, as there is less of it. However, you are not helped, you are put at further disadvantage by having battles to fight and things to prove that others don’t.

Recently, many battles have come together and it just feels like society is against me. Can anything else go wrong?

I feel I have asked so many people for advice and no one really knows the answer. Some things seem to be a postcode lottery. Which really isn’t fair. One useful document I would definitely recommend is Disability Right’s Handbook, issued by Disability Rights UK and availale from their shop, it isn’t cheap, but it is worth it.

I have got to the point where I cannot cope with anymore battles. I wanted to give people a chance, I have, but they have not sorted it so contacting my MP and Councillor seems the only way.

Why should I have to reach out to my MP to get what I deserve and need? Surely that is wrong?

Enable Us Don’t Disable Us

We as disabled people are being DISabled not ENabled. We can make a difference and contribute to society, but are being worn down so we have little energy left to contribute.

Please ENable us don’t DISable us.

Hannah x

You might be interested in reading a previous blog post: The Battle of Being Chronically Ill