Disability,  Wheelchair user

Manic May!

May was well a very busy month. I never have a ‘quiet’ life, it is always busy. Nevertheless, May seemed especially hectic, which considering I didn’t have my usual activities of hydrotherapy, physiotherapy, swimming, work experience and oxygen therapy seems surprising.

Hannah on the TV wearing a mustard cardigan with her hair tied up and wearing glasses. A ribbon at the bottom of the picture with the name 'Hannah Deakin' in it.
Hannah on Channel 5 news

I have been doing daily physiotherapy to try and keep mobile, keep up my progress and not get too stiff. I have also managed to have a couple of zoom physiotherapy appointments. I have been really missing my hydrotherapy and swimming in the water. It makes such a difference. It helps my muscles, strength, pain and general fitness so much.
I have also been trying to sort out the added administration of employing PAs and what they are entitled to with new rules and regulations, as well as attempting to try and cover many shifts. This has been hard and it is trying to get the balance between protecting myself, but accessing the care I need.
My parents have been amazing, the support they have and always provide me, however this has been to a whole new level. A level that is not sustainable. It concerns me the impact that is having on their health.

What Else Have I Been Up to?

Studying Journalism

I began a journalism course (Level 3-certificate in Foundation Journalism) via zoom for one and a half hours each week. A great opportunity I have been given through Ability Today (a fantastic social enterprise scheme I am involved with whose slogan is ‘Let’s focus on what we can do, not what we can’t’) to study in conjunction with the NCTJ (National council for trainee journalists).

The Lifestyle Magazine

I was featured in Motability’s ‘Lifestyle’ magazine.

The page of the magazine which Hannah is featured. On the left there is a photo of Hannah sitting in her powerchair with a quote at the top saying 'I hope to give support to others, so they feel less isolated.' On the right is the text.
Hannah’s motability magazine article

I Am on TV! Channel 5 & Sky News

I was quoted in a press release by Scope regarding disability and Coronavirus. This lead me to being interviewed by Sky news and Channel 5, having my article published on sky news website and being featured in an article on the inews with Ajay on fears around treatment we would receive if we got the virus.

Click here to watch my Channel 5 interview.

Hannah sitting in her powerchair, 2 metres apart from the journalist in her garden being interviewed.
Hannah on Channel 5 news

Click here to watch my Sky news interview.

Hannah speaking on TV. The ribbon across the bottom says 'Complex Regional Pain Syndrome sufferer, Hannah Deakin'.
Hannah on Sky news

Click here to read my article on the Sky news website.

Click here to read the article I am in with Ajay on the Inews.

I am the face of the #WontBeForgotten campaign with Scope. My ‘real life story’ is published on Scope’s website.Click here to read my ‘real life story‘.
I also wrote a guest blog post for ‘Life on Breadline’ blog about ‘How will the Coronavirus crisis affect disabled people?’

Pacing!

I didn’t do very well with pacing shall we say and suffered for a long time after, even with the interviews on different days. Other things have been in the pipeline and the hard work has been done earlier in the year or even last year, but the result has now materialised. Nevertheless, I hope I made a small positive impact or difference.

I hope you have had a good month.

Hannah x

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